Three steps back...

A week or so ago I was feeling overwhelmed at all the stuff I needed to do to push Annie along, because she was on a wave of feeling good. That wave is gone. We're back to square one, or minus one, as she is struggling again with nausea and vomiting. Annie had multiple seizures today, and threw up 3 times.

I think we're going to have to wean down on the Banzel, which I think is causing the vomiting...and I'm not sure what we'll try next. Something, I'm sure. But it is the nature of Lennox-Gastaut seizures to elude easy solutions. We were hoping that this new drug, which specifically targets her type of seizures, would work. It's discouraging that the side effect of nausea/vomiting is so severe in Annie that we may need to discontinue the drug.

Chronic illness is the pits.

Jean

Trust in the Lord with all your heart, and lean not on your own understanding; in all your ways acknowledge Him, and He shall direct your paths. Proverbs 3:5-6