Seizures don't rock

Annie's had a cold this past week and a half--sneezing being her most obvious symptom that something isn't quite right. That and the number of seizures she's had each day. Yesterday she had 8. Today she's "only" had about 4, but she keeps bobbing her head like there are more subclinical ones...she just isn't tracking like she usually does. Occasionally, she'll perk up and look alert, and then drift back into her glazed-over stares.

I've had her on double dose hydrocortisone the whole week, which helps with her Addison's, but I suspect actually brings on more seizures because of the spike in blood sugar it causes. Very frustrating. Today I started bringing her back down to normal hydro dose...we'll see how she does.

I called her neurologist, and he says she's maxed out on the Banzel--the one anti-seizure med that has been the most effective against her drop seizures--so we can't increase the dose. The other drug that helps with her absence seizures is Lamictal, and we can increase that dose, so we will, beginning tomorrow morning.

Her main seizure types are drop and absence--which is common with Lennox-Gastaut seizure disorder. The other thing that is common with LG is a waxing and waning of seizure activity. But in Annie's case, I never know if the seizures are simply there for no particular reason, or if they are caused by illness, or if they are brought on by the increased doses of hydrocortisone that I give her when she's sick. But I do notice that shortly after I give her the hydrocortisone, she seizes. Not always, but often.

Please pray that this seizure pattern end, and that she return quickly to her lively self.

Thanks--

Jean

Return, O Lord, how long?

And have compassion on Your servants.

Oh, satisfy us early with Your mercy,

That we may rejoice and be glad all our days!

Make us glad according to the days in which You have afflicted us,

the years in which we have seen evil.

Let Your work appear to Your servants,

And Your glory to their children. Psalm 90: 13-16