Mall Walk
Jack and I took Annie for a mall walk in her Kidwalk this week. We were there early in the morning with the new moms and babies in strollers, retirees, and assorted diehard exercisers. Annie got lots of smiles from everyone and a few curious looks at her lime green walker with the wheels that light up. I'd like to do this a couple of times a week, early in the morning before the teenagers with too much expendable income crowd in. Anyone want to join us afterward for coffee at Starbucks?
I have to share, too, that Annie has had a run of no seizures for at least two weeks. I think the extra fludrocortisone (a drug for Addison's) is helping with this, because it helps regulate fluids in her body and brain. She had been low on sodium, with symptoms of nausea, lethargy and--seizures. The low sodium is a common problem with people who have Addison's, because the part of your adrenal glands that regulates fluid in your body is damaged. I found an interesting article that speaks about the connection between hyponatremia (low sodium) and seizures. Read more about it here: http://professionals.epilepsy.com/page/electroab_hyponatremia.html
Anyway--no seizures equals a brighter, more alert, vocal, happy Annie. Very bright. When I see her like this, I think--if we could end these seizures, she might actually have a fighting chance to make some significant progress, both physically and cognitively. Because if we could get rid of the seizures, then we could get right of the seizure medicine, which causes things like loss of balance or coordination, difficulty speaking, drowsiness, weakness, unsteady walking, blah, blah, blah. But--she is making great progress this summer. And that is good.
Jean
"He answered their prayers, because they trusted in Him." 1 Chronicles 5:20b